Living with Psoriatic Arthritis (PsA)
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
Psoriatic Arthritis (PsA) is a type of inflammatory arthritis which affects people who suffer from the chronic skin condition, psoriasis.<br>Common symptoms of psoriatic arthritis include pain, swelling, or stiffness in one or more joints that are red or warm to the touch. Persons with psoriatic arthritis also experience pain in and around the feet and ankles, especially tendonitis in the Achilles tendon or Plantar fasciitis in the sole of the foot and in the area of the Sacrum (the lower back, above the tailbone). Changes to the nails, such as pitting or separation from the nail bed also occurs.
New member Check In
If you are a new member, sign in and say, "Hi," introduce yourself, and share your story. We are not a clique. We are not elitists. We are a group of fellow PsA sufferers, who are all in pursuit of improving our lives and better controlling our disease. We have all become friends and partners. Start your forum experience here
A newbies Guide to PsA
Welcome! Come here to vent, share and learn. We do get it, and if we think you're having a pity party we'll tell you to give your head a shake. We're pretty focused on evidence-based treatments here, and we don't go in for a whole lot of drama, but we are a pretty sympathetic bunch on the whole. We know you have a million questions. This section is to help you answer a few. Please don’t hesitate to ask your questions though. These are short articles written by experienced PsA patients on range of topics for the newly diagnosed or those in process of being diagnosed. They are not highly technical, we leave that to others nor are they intended to be all-inclusive. We will be adding more so please come back often.
Open discussion about topics related to PsA.
PsA Symptoms - List your Symptoms
PsA is at best a unique disease, and we all feel like we are equally unique (maybe even weird.) But that isn't the case. Please list symptoms so everyone knows they aren't the only one. How it started how it was, and how it is now.
Want specific information or others experiences with a specific medication? This is the place for it.
PsA Articles, News and Research
This is the place to post links to scientific readings which enhance our understanding of PsA and treatments for it. The articles listed here have their roots in evidence-based research, and they have been directly or indirectly peer-reviewed. Other types of articles have their place in one of the other discussion categories. Although they may be peer-reviewed and evidence-based, articles and even studies don't always represent "fact". Articles and studies are largely the way scientists communicate ideas and opinions. They are are a great basis for discussion and learning but rarely should they be the basis for medical decisions. If you post a link, please state the topic of the article in the subject line. If you are posting more than one article, make separate posts for each.
Feeling down? Need to rant? This is the place. Let it rip, we are here to listen
While being young is great, being young with PsA is definitely not. We have found, and likely, so have you, that teens and young adults with rare illnesses are often have a hard time finding what they need: information, support, like minds, and others to share ideas or simply commiserate with. We are looking to change that. This is a place for the teen and young twenties crowd to talk about the things that matter the most to us as we carry on in our PsA battle. Share your stories, challenges, triumphs and worries with people that understand you the best.
This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with PsA. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. Treatment with medications is the only evidence-based treatment for Psoriatic Arthritis, but for some, treatment of the disease means more than medication alone - this is the place to discuss healing modalities that can complement medical treatment.
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
News from Bens Friends
How to get Started in Chat
Hurray, we can chat! If you scroll waaaaay down to the bottom of this page, you will see a new green chat area. This is a private chat only visible to registered users on Living with PsA. You'll have to register in order to view the Chat (you should only have to do this once):
This is an archieve of Blogs from the old site
Member photos and videos
Discussion about this site, its organization, how it works, and how we can improve it.
How to start chatting