Living with Psoriatic Arthritis (PsA) - Online Support Group
We are patients living with Psoriatic Arthritis, here for your support.
This group is focused on ways to help your PSA naturally. Members may present different natural remedies, diet and treatments. The goals of the group are data collection, research, surveys, compilation of data and self-initiated
study about natural healing.
Disclaimer:
As always, we recommend that you follow the treatment recommendations of
your doctor. But if you have found safe, natural remedies that offer relief for your symptoms, you are welcome to discuss them here.
Members: 11
Latest Activity: Apr 23
Started by bella. Last reply by indigo Mar 26. 1 Reply 0 Likes
Ginger, may help your nausea and also helps with travel sickness. It helps with digestion as well and soothes your tummy and helps relieve wind. There are sachets to make a drink. You can grate it…Continue
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Welcome to the site. I am a new member also and am still learning email ettiquette. I did some research on the Bowen technique. I have never heard of it, but it does sound relaxing and integrating. There appear to be some practioners not tooo far. I am still on a wholistic treatment plan, but would definately consider it in the future. Thanxs!
Comment by Riseabove64 on April 1, 2013 at 4:54am Hello Bella, Indigo and Cruella.
I'm a newbie to this site, shame more people aren't members of this group.
My pso, closely followed by pso- arth, started almost 30 years ago, and although I haven't worked out all the details, I'm sure that as I don't have the genetic predisposition (CARD14, but am not sure as the test was done here in France), then the root of my problem probably lies in the "unconscious" and it's relation to the parasympathetic nervous system.
After "coming off" remicade rather disillusioned 3 months ago, I've been re-hitting the "natural" options big time.
Ever since first diagnosed I've tried all sorts of " alternative"techniques & treatments with varying but limited success.
Would just like to recommend the "Bowen" technique and kinesiology as 2 relatively promising tools for calming down, befriending, and understanding the psycho-somatic mechanisms behind this condition.
I agree and it sounds like you have been doing this for quite a while too. We are the canaries in the coal mine because of our increased sensitivites...without a map! Maybe what we share will help someone, somewhere, somehow. Thanks!
What I eat does seem to make a difference to my general well being and it helps me cope with my PSA. So does a good nights sleep and gentle exercise. So far it has not been a cure but I consider that I need to protect my body from other health problems. I try and eat healthy, plenty of fruit and vegetables, avoid saturated and trans fats. I avoid processed foods, preservatives and added chemicals and artificial colourings. I try and use alternatives to sugar with honey, agave and maple syrup and I limit my red meat intake. I am not fanatical and often find myself in situations where I can't avoid eating food I would not normally eat and break my regular eating pattern. I don't worry too much about this and I get back onto my eating habits the very next day.
Thank you Cruella for the encouragement!
Kind of lonely here. But I will continue imputing my experiences with alternative medicine. After 11 years(actually all my life) of giving "regular" doctors a chance and trying to help myself with what I could get off the internet and books. My dental hygenist recommended a wholistic dr. I am for the FIRST time seeing many of my symptoms turn around. My father's family has a predisposition for allergies, rheumatoid/psoriatic arthritis, psoriasis, colitis, alcoholism and other autoimmune diseases. I know from watching my dad and cousins that I was headed exactly the same way and had been fighting this as best I knew how.
I had sun sensitivities which became psoriasis on my face, earlobes, arms, legs in grammar school. Biopsies were done and nothing showed. Treated with coal tar baths/meds and had to wrap my arms in saran wrap at night, perpetually tired, abdominal bloatation. As a young adult I had all the above but more pronounced plus monthly/post stress/MSG migraines plus mind fog that came unpredictably,and constipation which I thought was normal.
My point into going into this history is that the physical, emotional and social consequences of psoriasis and related disease affect us for the rest of our lives. I hope that children with auto immune can be helped sooner once the true causes are known, something in my opinion that the established medical community is avoiding. Sorry, I digress.
At 42 I developed fribroids that the gyn dr said had to be taken out for my own good. That was my one option HE gave me. I chanced on a book, called I think...No More Hysterectomies (?). Basically, It advised me to get off the beef and dairy that had hormones and antibiotics. I did. The fibroids didn't disappear-but they did stop growing. I finally found one skeptical dr that would wait with me. 15 years later, past menopause, those fibroids shrank. It makes me sad to know how many women are put through this unnecessary surgery and future consequences, if they had access to this info. Even so, at the time and even now, many people won't believe the connection.
About 11 years ago I began to have balance issues, sleep disorders and mental confusion. Enough that I became frightened about work consequences. I went to a counselor. She told me she didn't believe it was mental. I was advised to have a physical. Again by chance I found a book ,sorry, I can not remember the name that described my symptoms exactly. I would feel better, sleep all night if I got off the wheat. It WORKED!! I was stunned. Within 2 days, as she said, I would sleep all night. This is now common knowledge, but at the time people fround it eccentric. I also found that I could now go out in the sun and even get a burn without triggering sun rashes! (Well, I did have one more while on vacation,but then I did eat wheat.)
Ok, about 4 years ago the mental fog was coming back with a vengence. The neurologist did multiple brain scans, adjusted my serotonin, took blood work. Nothing helped. After 2+ years sent me to a psychologist, who returned the verdict that for my IQ, my mind was too slow and too short. He finally looked at my vitamin B's and homocysteine level. My homocysteine(which is often high in Alzheimer patients and he had warned me was a possiblity) was elevated and my B's were low. He had me get sublingual vitamin Bs with folic acid. Tiny, cheap worked!!! By not eating wheat,and not taking vitamins (triggered migraines after 2 days) I had created another problem. After about 3 weeks, even my supervisor commented on my improvement. I actually began to feel empowered and confident about my health.
Then over a year ago the arthritis kicked in. Here is where the copper bracelet segment comes in.
Next time I will work our way to my wholistic doctor's treatment plan that is helping me the most.
Thanks for sharing information!
I want to tell about my experience with copper bracelets. I had been having pain in my back, my shoulders, back of knee. My wrists and hands hurt just from the weight of my hands hanging down. In Arizona I bought a simple Navajo bracelet. Within 30 mins my skin turned green. That night at about 3am, I woke up to find the pain was gone and I was sleeping on my side again! I could not believe this old remedy worked. Since then, I do have occasional pain, but it is bearable. I now have more muscles back in my hands since I can move them. I can only go about 2 days without the bracelet. I know not everybody will be helped with copper and I do not know how long this repreive will last. But if you decide to try it, buy quality copper (cheaper may contain other undesirable metals mixed in) and be sure there it makes good skin contact. I clean mine with a mix of diluted lemon juice and salt. Now I notice that my bracelet rarely turns my wrist green and certain foods seem to have a lot to do with that.
Tummeric has been used for centuries and possible longer as an anti inflammatory.
Use it in your cooking as ofen as you can.
Cucumin a supplement that is a anti inlfammatory pain reliever which uses the active component that is in Tummeric.
Thanks for starting this.
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Posted by luv2kayak on May 23, 2013 at 6:21pm 0 Comments 0 Likes
OK..so I have taken two doses of MX. The first time I was wiped out for the whole next day napping and then needed to go to bed early each night. I did not want to take my next dose but I did and to my surprise, I felt ok the next day...until…
ContinuePosted by Armando Abrero on May 19, 2013 at 10:07am 0 Comments 0 Likes
Just sharing this site featuring the "soul songs" of Jamie Mitges, passionate father of two who is no stranger to pain--physical and mental.
As a child he was a victim of bullying. Living…
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