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PsA & FIBROMYALGIA

A place to share, exchange information or just vent, for members and caregivers who are dealing with PsA and Fibromyalgia.

Members: 48
Latest Activity: Mar 23

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Comment by waterfairy on March 23, 2014 at 10:40pm

I know I had the Fibro before I developed the Psa but the past few years its getting where I can not tell if I am having a firbro flare anymore cause I just hurt everywhere anyway. 

Comment by AngelMary on January 7, 2014 at 1:42pm

This is awesome that you have a group that caters to both PsA and fibromyalgia.  I have both as well as asthma, well actually the list goes on.  But to be able to talk to people like me that suffer from both is wonderful to have.  I look forward to chatting with you all and meeting new people.  I have so many struggles to share.  And I can help you too.  I feel better when you feel better.   Let's chat some time, I could really use a shoulder to cry on and can help you in process too.

Comment by Gelita on April 13, 2013 at 5:01am

Hi BTMOM,

Yes!!!!! I love the Savella!!!! Cannot live without it! Although Lyrica works, Savella compliments it and help me inmensely. I heard a Dr. once say that Savella was the only med created specifically for Fibro.

Comment by btmom on April 12, 2013 at 9:43pm

Have any of you out there tried Savella? I too, am no stranger to fibro or Psa.  I take methotrexate, Humira, Mobic, tramodol (only will take something stronger if pain is unbearable), Nuvigil, leucovoran, zoloft, and vit d (because of the mtx). For some reason I was not a candidate for Lyrica, I can't remember why...

I have been on Savella for about 5 months. I think it is helping... not perfect, but better. The real problem is I'm having a HUGE Psa flare right now, and have been for a few months. The fatique (along with the pain) is about doing me in! It is a little better than a month ago, but I can hardly drive to/from work without feeling like I'm falling asleep - even with Nuvigil!!!!

Here's hoping this clears up soon!!

Comment by treasure7 on March 29, 2013 at 4:25pm

I have both and have been switching back and forth. SIgning on and off.  This would alleviate that issue. 

Comment by treasure7 on March 23, 2013 at 12:36pm

Also have diag of Chronic Fatigue since 99. Carpal tunnell, ulna radial neuropathy, post herpatic neupathy, sciatica, spinal arthritis, injured back in 86.

 

Comment by treasure7 on March 23, 2013 at 12:30pm

I have been diagnosed with fibro since 99, have severe arthritis in spine and joints, PsA also.  Been thru the gamut of treatments.  Been on methotrexate and cymbalta.  Could not take Lyrica after waiting 5 years for it to be on market, suicidal thoughts, etc., stomach.  Had to quit Cymbalta as the side effects were too severe for me.  Methotrexate at .7 not doing any good.  Depression is about to get the best of me or already has, not much hope for a life, no pity here just reality.  Feeling very old and very tired of pain. Rheumy has taken on partners patients also, too much on one Dr. as we will see from now on.  Need help.

 

Comment by Lovemydogs on March 17, 2013 at 9:05pm

Hi ya'll   seeing my reumy on tuesday.  She has refuses to dicuss acknowledge fibro symptoms saying everything I feel - pain and all - is from the PsA.  Suggestions for my conversation with her this time?

Comment by GE on January 13, 2013 at 4:52pm

Hello, everybody. I was diagnosed with Fibro and PsA last year. I believe the Fibro and all it´s related complications started creeping in when I was a teenager and kicked in for real last year. Slowly, the PsA came on, I had minor outbreaks of psoriasis on my elbows in my twenties and again on my scalp last year. This last August, the joint issues came about, sacroiliac joint and daily pain in both legs from then on.

I am taking 450mg of Lyrica daily and it started working like a charm from day one. I just started using Enbrel, have had three shots total. I believe it takes a little longer for the Enbrel to become effective for real and I´m curious to know how long it took for other members who are using it.

Pain is still evident every day and pollen allergies bother me a lot. They throw my immune system out of whack and I feel like I´m back to square one on days with high pollen count.

Comment by Gelita on December 12, 2012 at 3:26am

Hi, New to this blog but not new to Fibro.

I was diagnosed with Moderate to Severe Fibro at Mayo Clinic before PsA, although PsA came first. My pain level is out of this world, although I am managing better now. With an aggressive PsA, a severe Fibro and now Lupus-Like Syndrome, pain can become unbearable. A Fibro flare can block my breathing (Hypoxia and Apnea) which accelerates my heart--I have oxygen at home, which I hook to a CPAP, can leave me speechless--after many tests, they reversed their diagnosis of stroke and ruled severe Fibro, and deprive me of any mobility. Yes, I sometimes wonder which flare I have--PsA, Lupus, or Fibro, but Fibro is added to any of the other two--always. I must control PsA and Lupus to help control the Fibro.

Yes, my PsA meds help the Fibro. Relieving pain avoids a Fibro flare, my pain is a Fibro trigger.

 

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