Information

PsA & FIBROMYALGIA

A place to share, exchange information or just vent, for members and caregivers who are dealing with PsA and Fibromyalgia.

Members: 58
Latest Activity: Oct 10

Comment Wall

Comment

You need to be a member of PsA & FIBROMYALGIA to add comments!


Moderator
Comment by GrumpyCat on October 10, 2014 at 6:30am
Hi,Dee! It seems no one has been by to answer your question. You never know in the groups if someone will be in. Why don't you post directly in the discussions area? You'll get more responses there.
Comment by Dee35 on September 30, 2014 at 8:55am
Anyone tried cimzia for psa yet? Ive been on mtx for the past 2.5 yrs, has cleared my skin, but joints still hurt. So dr is suggesting cimzia or humira. These are also the 2 meds ins wants me to try before others. I haven't heard much on cimzia and am curious.
Comment by waterfairy on March 23, 2014 at 10:40pm

I know I had the Fibro before I developed the Psa but the past few years its getting where I can not tell if I am having a firbro flare anymore cause I just hurt everywhere anyway. 

Comment by AngelMary on January 7, 2014 at 1:42pm

This is awesome that you have a group that caters to both PsA and fibromyalgia.  I have both as well as asthma, well actually the list goes on.  But to be able to talk to people like me that suffer from both is wonderful to have.  I look forward to chatting with you all and meeting new people.  I have so many struggles to share.  And I can help you too.  I feel better when you feel better.   Let's chat some time, I could really use a shoulder to cry on and can help you in process too.

Comment by Gelita on April 13, 2013 at 5:01am

Hi BTMOM,

Yes!!!!! I love the Savella!!!! Cannot live without it! Although Lyrica works, Savella compliments it and help me inmensely. I heard a Dr. once say that Savella was the only med created specifically for Fibro.

Comment by btmom on April 12, 2013 at 9:43pm

Have any of you out there tried Savella? I too, am no stranger to fibro or Psa.  I take methotrexate, Humira, Mobic, tramodol (only will take something stronger if pain is unbearable), Nuvigil, leucovoran, zoloft, and vit d (because of the mtx). For some reason I was not a candidate for Lyrica, I can't remember why...

I have been on Savella for about 5 months. I think it is helping... not perfect, but better. The real problem is I'm having a HUGE Psa flare right now, and have been for a few months. The fatique (along with the pain) is about doing me in! It is a little better than a month ago, but I can hardly drive to/from work without feeling like I'm falling asleep - even with Nuvigil!!!!

Here's hoping this clears up soon!!

Comment by treasure7 on March 29, 2013 at 4:25pm

I have both and have been switching back and forth. SIgning on and off.  This would alleviate that issue. 

Comment by treasure7 on March 23, 2013 at 12:36pm

Also have diag of Chronic Fatigue since 99. Carpal tunnell, ulna radial neuropathy, post herpatic neupathy, sciatica, spinal arthritis, injured back in 86.

 

Comment by treasure7 on March 23, 2013 at 12:30pm

I have been diagnosed with fibro since 99, have severe arthritis in spine and joints, PsA also.  Been thru the gamut of treatments.  Been on methotrexate and cymbalta.  Could not take Lyrica after waiting 5 years for it to be on market, suicidal thoughts, etc., stomach.  Had to quit Cymbalta as the side effects were too severe for me.  Methotrexate at .7 not doing any good.  Depression is about to get the best of me or already has, not much hope for a life, no pity here just reality.  Feeling very old and very tired of pain. Rheumy has taken on partners patients also, too much on one Dr. as we will see from now on.  Need help.

 

Comment by GE on January 13, 2013 at 4:52pm

Hello, everybody. I was diagnosed with Fibro and PsA last year. I believe the Fibro and all it´s related complications started creeping in when I was a teenager and kicked in for real last year. Slowly, the PsA came on, I had minor outbreaks of psoriasis on my elbows in my twenties and again on my scalp last year. This last August, the joint issues came about, sacroiliac joint and daily pain in both legs from then on.

I am taking 450mg of Lyrica daily and it started working like a charm from day one. I just started using Enbrel, have had three shots total. I believe it takes a little longer for the Enbrel to become effective for real and I´m curious to know how long it took for other members who are using it.

Pain is still evident every day and pollen allergies bother me a lot. They throw my immune system out of whack and I feel like I´m back to square one on days with high pollen count.

 

Members (57)

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingWithPsoriaticArthritis.org, Click an Ad. Or Two.

Join Ben's Friends

Photos

Loading…

"To Know the Joy of Giving"

Blog Posts

Stress and PsA

Posted by pinkgrl1968 on December 16, 2014 at 8:08pm 6 Comments

I have been feeling pretty good for a while now, but the day after thanksgiving I came home from work, my fiancée went to work and I went to bed only to be woken up an hour later by a knock at the door. my fiancée's co-worker telling me I needed…

Continue

Feeling Great, There is Hope

Posted by Andy on December 16, 2014 at 3:42pm 2 Comments

I'm always somewhat reluctant to say I feel great, but I have for a few weeks so I think I'm safe. I had RFA treatments on my lower back and a great physical therapist. I still have some SI joint pain, but it's tolerable. I am no longer taking…

Continue

Events

About

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service