We are patients living with Psoriatic Arthritis, here for your support.
A place to share, exchange information or just vent, for members and caregivers who are dealing with PsA and Fibromyalgia.
Latest Activity: Jan 17
Started by SK. Last reply by Stevan_Mcgrath Feb 21, 2014.
Started by SK. Last reply by Gelita Aug 23, 2013.
Started by SK. Last reply by SK Aug 19, 2013.
Started by SK. Last reply by Gelita Aug 19, 2013.
I know I had the Fibro before I developed the Psa but the past few years its getting where I can not tell if I am having a firbro flare anymore cause I just hurt everywhere anyway.
This is awesome that you have a group that caters to both PsA and fibromyalgia. I have both as well as asthma, well actually the list goes on. But to be able to talk to people like me that suffer from both is wonderful to have. I look forward to chatting with you all and meeting new people. I have so many struggles to share. And I can help you too. I feel better when you feel better. Let's chat some time, I could really use a shoulder to cry on and can help you in process too.
Yes!!!!! I love the Savella!!!! Cannot live without it! Although Lyrica works, Savella compliments it and help me inmensely. I heard a Dr. once say that Savella was the only med created specifically for Fibro.
Have any of you out there tried Savella? I too, am no stranger to fibro or Psa. I take methotrexate, Humira, Mobic, tramodol (only will take something stronger if pain is unbearable), Nuvigil, leucovoran, zoloft, and vit d (because of the mtx). For some reason I was not a candidate for Lyrica, I can't remember why...
I have been on Savella for about 5 months. I think it is helping... not perfect, but better. The real problem is I'm having a HUGE Psa flare right now, and have been for a few months. The fatique (along with the pain) is about doing me in! It is a little better than a month ago, but I can hardly drive to/from work without feeling like I'm falling asleep - even with Nuvigil!!!!
Here's hoping this clears up soon!!
I have both and have been switching back and forth. SIgning on and off. This would alleviate that issue.
Also have diag of Chronic Fatigue since 99. Carpal tunnell, ulna radial neuropathy, post herpatic neupathy, sciatica, spinal arthritis, injured back in 86.
I have been diagnosed with fibro since 99, have severe arthritis in spine and joints, PsA also. Been thru the gamut of treatments. Been on methotrexate and cymbalta. Could not take Lyrica after waiting 5 years for it to be on market, suicidal thoughts, etc., stomach. Had to quit Cymbalta as the side effects were too severe for me. Methotrexate at .7 not doing any good. Depression is about to get the best of me or already has, not much hope for a life, no pity here just reality. Feeling very old and very tired of pain. Rheumy has taken on partners patients also, too much on one Dr. as we will see from now on. Need help.
Hello, everybody. I was diagnosed with Fibro and PsA last year. I believe the Fibro and all it´s related complications started creeping in when I was a teenager and kicked in for real last year. Slowly, the PsA came on, I had minor outbreaks of psoriasis on my elbows in my twenties and again on my scalp last year. This last August, the joint issues came about, sacroiliac joint and daily pain in both legs from then on.
I am taking 450mg of Lyrica daily and it started working like a charm from day one. I just started using Enbrel, have had three shots total. I believe it takes a little longer for the Enbrel to become effective for real and I´m curious to know how long it took for other members who are using it.
Pain is still evident every day and pollen allergies bother me a lot. They throw my immune system out of whack and I feel like I´m back to square one on days with high pollen count.
Welcome toLiving with Psoriatic Arthritis (PsA) - Online Support Group
Sign Upor Sign In
Other Ways To Help...
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Acute Disseminated Encephalomyelitis (ADEM)
Arteriovenous Malformation (AVM)
Atrial Septal Defect
Caregiver Support Community
Charcot Marie Tooth (CMT)
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Guillain-Barre Syndrome (GBS)
Mast Cell Disorder
Oculopharyngeal Muscular Dystrophy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN) Ulcerative Colitis
Von Willebrand's Disease (VWD)
Other Rare Diseases
To get support, give support
Posted by amielynn38 on March 29, 2015 at 5:20pm
I thought about starting a blog. Just a place where I could place my thought. Nice that this forum has that option. Thanks!
I've had PsA since I was young. My earliest memories are of my knees hurting. They hurt all the time. I also was…
Posted by IL-Gal on March 29, 2015 at 1:28am
Is there any kind of organization that helps people pay for MRI and things like that? In the US.
© 2015 Created by BensFriends.org
Report an Issue |
Terms of Service
Please check your browser settings or contact your system administrator.