A place to share, exchange information or just vent, for members and caregivers who are dealing with PsA and Fibromyalgia.

Members: 67
Latest Activity: Nov 15

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Younger folks who suffer with both Fibro and PsA

Started by Medic_chick86. Last reply by Queenpink Nov 15. 4 Replies

Hello All! I am so happy to finally find a group of people who have similar experience to me! I was first diagnosed with Fibro about 5 years ago. The back, neck, and leg pain on a daily basis was…Continue

Hello and how to differentiate between arthritis pain and fibromyalgia pain :)

Started by ladylazarus. Last reply by Suzanne Sep 19. 1 Reply

Hello everyone,I should tell you about myself first I guess :) The story is quite long but to cut it short, what sent me to a rheumy's office was horrible SI joint pain on May last year. Before the…Continue

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Comment by Louise Hoy on September 20, 2015 at 2:04am
Definitely GrumpyCat!
I've streamlined my life to make everything as easy for me as possible for me to cope. It doesn't happen overnight but its worth working out what is essential and what's not. My PsA is currently in remission (Yay!!) but my Fibro has gone into a big time flare. I am so relieved that things like my housework are easier for me to perform and my garden.....which used to be a jungle as I couldn't keep up with it, is now beautifully low maintenance. My neighbours wanted to buy the end chunk and that gave me the finances to get someone in to do the hard work. Having my home life made easier gives me more energy for working, so if you can simplify whatever you can is a great way to help yourself
Comment by Sparkles36 on September 19, 2015 at 1:55am

I refuse to give up typing until I just can't do it anymore because I absolutely love it.  I have been doing it since high school and am very good at it and it is stress relieving for me, if that makes any sense at all.  Something that is painful most of the time is stress relieving lol....go figure.  Someone told me about the Dragon Dictate software but I just don't want to give it up yet. It is like one of the last things that I really enjoy that I don't want to let these illnesses take over.  They have taken over so much already.  Never thought I would feel so bad about taking advantage of squeezing a conditioner bottle in my life.  Now I pumps because I just can't handle it.

Comment by GrumpyCat on September 18, 2015 at 6:54pm
I will often use the personal shoppers at my grocery store, then I just have to pick everything up. You just have to find little adaptation like the personal shoppers to help save you time and energy.
I read your profile and noticed that you'd had problems with your hands that made typing difficult. My hands are a mess too. When I was working, I ordered the Dragon Dictate software. I payed for it out of pocket, because sometimes it's easier if work doesn't know too much about your health. It was around $70.00, and worth every penny. No more typing, and my WPM didn't suffer one bit. Every short cut you can find that saves you energy and decreases pain/inflammation is worth it. It takes time to figure out what works for you, but that'll come.
Comment by Sparkles36 on September 18, 2015 at 5:44pm

you know, now that you mention it I order a lot of stuff online too....didn't realize it until today when i saw the fedex guy and i was like i need to get you a christmas present because you are always here lol

Comment by Minx34 on September 18, 2015 at 9:37am
Hi Sparkles. I wish there was an easy answer to your post but, alas, I have not found it!
I have recently started on a biological drug (Cimzia) which has eased some pain and stiffness etc in my joints but I am now experience a lot of other pain which I am putting down to the fact that it is my fibro now standing out and, also, the fact that I am now using muscles that have not been used for a long time!
I know all the advice about pacing yourself etc and resting when needed but, to be honest, it is hard to fight the urge to do things when you are having a "good" day (especially for me as I live alone with no support near by) so inevitably you suffer for it afterwards.
I think one thing I have learnt is not to "sweat the small stuff". Listen to your body and if it means your house doesn't get cleaned as often etc what! The world won't crumble!
As for making a "schedule" it could be a good idea but could also put pressure on you if you wake up feeling crap and cannot stick to it and the stress will do you no good at all.
Try and find ways of doing what needs done as easiest as possible for you...for example when I am not too good I order my shopping on line and get it delivered, or, order it to be collected at the store so I am not having to drag myself around!
I appreciate our lives are different as I unfortunately lost my job and don't have children but I have found that letting go of "feeling guilty" for not coping with things makes a big difference. Saying "No" to people and doing things when you are not feeling up to it is also hard, but it is not being selfish if you are looking after yourself because of it.
I am sure lots of people on here have different ways of coping with these illnesses and I wish I could wave a big "Sod off PSA and Fibro" wand over us all but, alas, I have many talents but unfortunately that is not one!
Try to keep smiling.
Lots of gentle hugs
Tracey xxx
Comment by Sparkles36 on September 18, 2015 at 6:01am
I am having issues with the daytime. Even though i try best to do everything I am always behind in everything.

Comment by GrumpyCat on September 18, 2015 at 5:57am
Sparkles, are you needing help with sleep schedule or just managing to get everything done in the daytime?

Comment by GrumpyCat on September 18, 2015 at 5:56am
Welcome Tilly and Sparkles!
Comment by Sparkles36 on September 17, 2015 at 6:01pm
Can anyone be of assistance? I have PsA and Fibro. I am having a super issue though with trying to figure out how to live so unpredictably as I am OCD about my time.... I try to stay busy because if I stop I buckle and can't muster the strength to get back up again. I work part time now instead of full and I go to university, church and have a 3 yr i get enough rest...i try. i go to sleep at a regular time a day but can never get comfy. I keep telling my mother i need to come up with some sort of schedule. Are there any suggestions......? They would be greatly appreciated. Thanks.

Comment by GrumpyCat on October 10, 2014 at 6:30am
Hi,Dee! It seems no one has been by to answer your question. You never know in the groups if someone will be in. Why don't you post directly in the discussions area? You'll get more responses there.

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enjoyment to kick off the PsA

Posted by superspear on November 21, 2015 at 12:29pm 3 Comments

Even after getting detected with active crohns recently. My rheumy said to avoid stress. I went on a holiday for a week. Attended a big fat indian wedding. And now back to work in full swing. The best way to kick off with it, enjoy, live happy, take… Continue

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