Hi everybody-happy 4th of July!

My daughter gave me my first shot--we did it in my stomach and there was no skin reaction-right now I can't even see the injection site!! (It was in my stomach because there's no fat on the tops of my thighs.) We got the SureClick AutoInjectors and I know I can do it myself-just wanted a nurse to do the first one. You don't even see the needle!

I'm hoping for quick relief, but so far nothing has changed. Oh, except one thing was different--I could not get to sleep last night, even though I was up at 6 a.m. yesterday, worked all day and had a busy evening, I was so hyper! I kept getting out of bed until about 3 a.m.. This is sort of unusual. And having only about 4 good hours of sleep, I'm not tired at all. 

I really don't expect SEs because I generally don't get them--or get very mild ones if I do. BUT,  50 mg twice a week is starting dose for psoriasis so I'm hopeful that will really kick my P and PsA in the butt and I will definitely shout that out to you guys and the world when it happens!!!! Like you all--I've had it up to here with this disease and if Enbrel doesn't work I'll need an antidepressant because this disease is really getting me down.

Have a nice day everyone! 

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Comment by Grandma J on July 7, 2014 at 1:23pm

Enbrel is going great! 2nd 50mg shot was this a.m., 3.5 days after first shot. It's not touching my psoriasis yet, but I really do think I'm feeling better because I've got more energy and feel less fatigued despite having average of 4.5 hrs sleep the past 4 nights, for one reason or another.

I'm traveling-actually spent a good part of the afternoon yesterday in the great city of Chicago-which is now one of my top fav cities (I've not traveled extensively, but Clearwater-FL, Duluth-MN, and lots of places in AZ were favs, but Chicago was amazing!) 

Just wanted any newbies to know it is possible to go on a biologic and not have any SEs--not even a site reaction! I was the biggest doubter-worried about possible SEs and catching all sorts of killer infections. It's too early to know if I'll catch more"bugs" or if or how long Enbrel will work for me, but I have to emphasize--IF a fraidy-cat like me can take the stuff, then anyone can! 

Comment by Grandma J on July 4, 2014 at 1:41pm

Thanks Stoney and Seenie! I have my cortisone creams for my P and also some OTC Cortizone10, which really helps after I put Clobetasol on my P and for some reason it starts itching like crazy. So I'll remember your advice and take my Cortisone10 with me just in case. I'm so thankful to all of you for all the good information and advice you're so eager to share! I'm not a bit scared of getting sick or having SEs anymore, thanks to you guys. The song "I Will Survive" keeps running through my head--remember that one?????

Comment by Stoney on July 4, 2014 at 12:28pm

Congrats that you got started on it.  I started Enbrel 4 months ago, and am having a good response to it.  I started noticing a difference after a few weeks, that was small and got better.  The biggest deal for me was that I did not have a spring flare!  I get a small site reaction, but it's never big, and never bothersome.  It appears 24 hours plus after the injection.

Comment by Seenie on July 4, 2014 at 9:20am
LOL Cool it Grandma J! I'm glad the first shot didn't give you any problems aside from the excitement. The chances of side effects from the biologics is far less than from the DMARDs. So far so good!
My site reactions didn't start until the second or third shot, so you should probably drop into a pharmacy and pick up a tube of anti-itch cream if you don't already have some. My site reactions got bigger with each shot for a few weeks. (At their biggest, the diameter of a hamburger patty.) The Enbrel folks were pretty laid back about it -- said it was nothing to fret about. I slathered it with cream several times a day, and eventually after several weeks I stopped having it. These days, after a year, I get an itchy "bite" for a day or so. Others get nothing.
Remind yourself: it takes a couple of MONTHS to see improvement. Anything you feel before that is a bonus or placebo effect. (And who cares if it's placebo effect! It feels good!) The best feeling of all is the feeling of hope and the knowledge that you are doing everything that you can to beat this adversary.
Enjoy your holiday!

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