Okay folks, I’ve got some good news. Apparently PsA ‘never’ affects the spine. It ‘never’ affects the thumb joint either. Or so this nurse practitioner I saw today tells me.
As it happens I do have back pain which I tend to attribute to wear & tear, which is why the subject of the spine came up. However the lady did fish out a (clear) chest x-ray which was taken after exposure to TB last year on which my scoliosis had been flagged up. Scoliosis? Eh? But apparently that wasn’t worth talking about either, apart from the comment that I must have had it a long time.
Chest pain? No idea. But she did come up with the suggestion that I might like to stop Mtx in case that was causing it. Or, another brilliant idea, I could stop Humira because “who knows? it might just be causing the pain and breathlessness”. By this point both me & my husband found that without thinking about it we were putting on our coats.
Oh, and having had x-rays of my feet at my last appointment with the rheumatologist (who did seem good) in October, I was interested to hear the results. Except that there aren’t any. Nobody wrote up the report and therefore nobody will now. Apparently “it happens sometimes”.
The only concession I wrung out of her was that I’m going to get an ultrasound of my thumb to see if there is any inflammation. But that will be sometime in the future, assuming of course anybody goes as far as to make the appointment.
There was a physical examination you might say. She tentatively prodded a few bits of me through my clothes and I didn’t scream so that’s all right then. I pointed out that even when some joints were swollen up like footballs palpation didn’t hurt but I don’t think she heard me. She mentioned that she was tired and couldn’t really think straight.
I’m meant to see this person again in 3 months. No I’m not. I’m going to see about a referral to the centre of excellence in Bath. I’ve got a new symptom: steam coming out of ears. Anyone else have that problem?