Been out of this group for 4 yrs.
since then I have been diagnosed with Psoriasis via skin biopsy. But never the PsA until I met a Rheumatologist just 4 months ago who is truly the best one so far! She ran more tests, did a thorough history and physical assessment of my body/joints and officially diagnosed me with Psoriatic Arthritis. I’ve been taken off Nabumetone to Sulindac which I had to stop due to Gastritis. Can’t take anymore NSAIDS/Anti-inflammatory coz of Gastritis.
I’ve been placed on tapering doses to maintenance dose of Prednisone 10mg for 3-4 weeks then due to increased Sed Rate to 68 despite Prednisone 10mg & increased joint pain, my Rheumatologist increased my Prednisone to 20mg daily—on it for about 2 weeks now. I have gained weight but my pain is not severe but still not tolerable. I will stay on Prednisone indefinitely per my Rheumy.
I am about to start Enbrel once my insurance approves it.
I am happy about that my Rheumy is on top of my medical issues.
But not about my family not understanding what I am going through. They feel like I am faking it. My husband and our 20yr old daughter doesn’t have compassion for my pain and inability to be as active as them. Or to be able to sleep like them. You know how hard it is to sleep when you have Prednisone and multiple pain or worries running in your head?!? Trying to have them come to my Rheumy appt as my doctor suggested but they don’t want to. That is my biggest frustration right now—to have my family actually be there and understand what I am going through and not make me feel more upset of what I can’t do and what I feel.