I’d be keen to hear from anyone who has had issues with hair loss on Leflunomide (Arava). As in, did stopping the Leflunomide stop the hair loss? Did your hair return to it’s original thickness after stopping the Leflunomide? And, how long did it take for your hair to stop dropping/recover after stopping the Leflunomide?
I did notice a little thinning of hair on Mtx, but it was minor so I wasn’t at all concerned (and luckily I had plenty of hair to start with, so no one would have really noticed that I’d dropped approx 1/4 of it Then we added Leflunomide into the mix, at 10mg daily I didn’t notice significant increase in hair loss, but ramp the dose up to 20mg daily and suddenly the increase in hair loss became very noticeable… after about 4 months of the 20mg dose I had lost what must be nearly 3/4 of what I originally started out with. My rheumy suggested dropping dose back to 10mg for a month and see if it makes any difference… I’m not so sure whether the loss has reduced from the reduced meds or just because there is less of it to lose now
Now, if the Leflunomide seemed to be helping I wouldn’t be at all concerned if I went completely bald (there are some pretty cool hats/scarves etc out there ) however, I really don’t think the Leflunomide has done diddly squat for anything, so losing the hair is definitely disappointing.
@ndrabick… You might be interested in following this thread, it was reading your welcome from @Eisi_BFintern that prompted me to post on this topic … with a bit of luck we might get some answers here that might help your daughter too