It’s been a while since I posted. I feel a bit bad as I feel I only pop up on here when I want something rather than giving help and advice to others but as it’s still all so new I’m not sure any advice I give would be of any help.
Following being signed off work for 2 months I am back, on a phased return every other day with short hours. Have been managing this since mid-August. I have had an occupational health assessment which recommended working from home 1-2 days per week and also said I am “covered by the disability provisions of the Equality Act”. Which although was hard to read it means I’m protected by the provisions of the Act and therefore work have to accommodate me. They just haven’t sorted out the work from home bit yet.
I’ve also now been told my iron stores are very low. Has anyone else had this? Is this because of Sulfasalazine? So on top of a cocktail of medication I’ve now got iron supplements.
Yesterday was a particularly bad day at work for me. I was in pain when I got to work as the traffic in Bristol was solid so I walked in to work. I took my Naproxen and then Cocodamol not long afterward and ended up being sick on myself in the toilet Like an idiot I tidied myself up and went back to my desk to carry on. The pain got too bad so I went home. My unsympathetic boss made me feel such a let down. I’m now wondering if it was a bug, a symptom of a flare, god knows. The days I’m not working are usually spent horizontal on the sofa. The rheumatologist is repeating my MRI on 8th October and then will decide if “it is an inflammatory arthritis” and increase my DMARDs. I’ve been diagnosed with it by a rheumy privately but my NHS consultant still remains unconvinced. I’ve been struggling for almost 18 months and it’s felt like a battle every step.
Have been feeling very sorry for myself. I’m 44 years old, a mum to a beautiful 13 year old who is my world. I’m worried about my future and feel I’m letting everyone down at the minute.
So today on my “rest day” I’m going to give myself a gentle kick up the bum. I’m going to go out for a coffee in the sunshine, email work and ask them to expedite my working from home plan and buy myself a diary to keep a track of the pain etc. Just thought might be a good idea to track it all as I find once the pain takes over I’m a blubbing wreck and have lost it completely. Am also going to join Slimming World tonight so going to plan my last supper today before I watch and think about everything I eat!!
Thanks for listening xx