Some of you knew i’d be back. hi Jen, poo and the others. you were all great people.
for those that dont know me… quick update.
Basically i had pain for 4 years in wrists and ankles and back. My issue is always refered pain in the joint… and very tight/sore muscles and tendons. refered pain can be confusing. is it the joint or the tight tendons near by?
was diagnosed with PsA, took Salafixazane (wrong spelling) Bad stuff couldnt continue after 2 weeks of upset tummy and dizziness, next was plaquinal. same… dizzy and bad tummy… 2 weeks. then i saw a new rumy
who told me i had no trace of PSA. diagnsoed me with Central Sensitisation.
I did well after this news. because i wasnt coping with the news i had PSA. finding out i did not have a horrible/degenerative condition and it was all brain was fabulous.
i then embraced this… did meditation… worked on staying calm… started telling myself there is nothing wrong… my pain cant hurt me. pain is in your mind. walked through it… even jogged. lifted heavy stuff at work… did gardenning. heavy works… you name it. had my life back. confident i am ok and can do anything and can ignore any pain along the way… the pain went away mostly… still sore sometimes but basically i defeated the condition.
I messaged you all and gave an update at that point.
i got worse again late last year. same symptoms as before. went to rumy… limping. ahh yes Psioriasis can effect the tendons in some people. No PSa but tendons effected by Psioriasis. he gave me strong anti-inflamitories. they did absolutely nothing, no effect. came back after a month. my elbow is bad now… cant bend it… takes guts to straighten, then feels releived to be straight, and then takes guts again to go back from straight. is this familiar?. explained it to him. he looked and siad still no joint issue… tight bicept… enthesitus!.
tendons under attack from general psioriasis. but still no PSA.
And good news… ive successfully defeated CS, fibro and no other symptoms/features are present.
I have since read that the tendons is a feature of PSA not Psioriasis and that joints will follow.
whats your take?
rely on the specialist or freak out?
My original diagnosis from the first rumy was i had PSA and it hadnt progressed far enough for damage in the joints to be detected so started treatment.
the second said no PSA. your fine. go do mental health for your fibro.
but now hes saying… um “lets up the anti and start you on a psioriasis treatment for the tendons” which just happen to be all the same treatments for Psa.
so was the original rumy correct. is the new one feeding me some info to manage me dishonestly? or am i a rare psioraisis case with tendon symptoms.
the entire time i get releif from massage and needling, so i would expect i still have no actual joint/bone issue
I told him i simply wont take any more DMARDs Not interested. if taking a nasty evil poison that will destroy stomach lining and liver along with all the wild side effects becomes my last option then i will simply neck myself. he said i dont qualify for biologics under the current requirements as i do not have 4 swollen joints and do not have 70% of my body covered in skin p.
Hes putting me on low dose naltrexone.
im concerned he said it is not tough on the liver. yet ive since read that it is.
i got a call from the compounding chemist making it telling me a different set of instructions to what the rumy told me so im very confused right now and unsure what to think or do.
not handling it as since i saw him last week my symptoms have escalated to worse than ever and now im losing the plot.