I wanted to share some updates and also any input on our current situation. My wife had biopsy in mid december 2018. Reports came back around mid Jan 2019, No lymphoma but she was diagnosed with tuberculosis. She did not had any other symptoms (no cough, no weightloss etc). Her chest CT scan was normal. So it was concluded that she has extra pulmonary TB. Few days later few more bad news, even though her Chest CT scan was normal, her sputum smear was normal but her sputum culture developed some MTB bacteria and she was told she had pulmonary TB now. Another bad news was after sensitivity test result were out she was also told that she had Drug resistant TB. We have started her MDR treatment now which is 24 months long.
She was taking Humira. We did TB test before starting Humira which told us that she has latent treatment and our rheumy started her on INH (latent TB antibiotic) for 6 weeks before starting humira. Point is even after that she got TB.
Now she has to take Short term disability and we are worried she might lose her job and insurance in case that happens. Because we are not sure how employers reacts to these cases.
I am not sure why Humira was suggested by rheumy instead of enbrel (read few papers saying enbrel is safer for latent TB patients). Does it have to do with lawsuit that was filed against abbott labs because they were asking doctors to push Humira over other medication.
My wife is in pain and her fingers are also swelling now may be because of all stress. But we cannot take any PsA related medication for few years now (MDR TB treatment is 24 months long). I was hoping if I can get some help on this community to control PsA with taking any drug.
I didn’t mean to discourage anyone from taking Biologics. But I just want share our experience. I know all the warnings are on Huimira packet. But what nobody tells you is when something actually happens there is chance that you might lose your job, your insurance and you will be locked in your house and not allowed to go out till doctors say its okay. It was our 5th wedding anniversary this tuesday and we couldnt even go out to a restaurant to celebrate.