Trust me @tntlamb, I don’t really begrudge them the sympathy I know they’re giving me by saying it. It was just aggravating to have the same dang thing said to me over and over. I know they a) don’t understand the disease, b) probably really don’t want to, and c) want to be nice to someone in pain.
To be clear, I also don’t begrudge them on either of those first two points either. Can any of us really say we’d want to know anything about this if we had the choice? Sure, there’s some of us - myself included - who would definitely listen and empathize the best we could, but it’s not something I’m going to force on these folks either. They have their own stuff to worry about, and if the most they want to do is make it clear they have some empathy, or even sympathy for me, that’s cool.
Today, even, another person here with a form of arthritis said she feels so bad for me. All I did was give a slight smile and say I’m adjusting. After all, I am, bit by bit, to my own personal new world order.