My rhumetologist says it could be the prednisone. I’ve been on 5 mg per day for 5 months with no end in sight. I’ve lost about 1/3 or my hair so far. It’s really bad. I also have moderate acne on my chest. I haven’t had a pimple in many years until this breakout.
I made the mistake of trying to stop taking it cold turkey. That was a mistake. I got really sick. Bad flare up, super nauseous, allergies really bad (I don’t normally suffer from allergies except in spring), and my eyes caught on fire. I had to get help from my optometrist and he gave me, guess what, more steroids in the form of eye drops.
I’ve also been getting steroid injections in my joints, one or two at a time, of 40 mg depo medrol. Yep, more steroids.
Rhumetologist said she will have to slowly wean me off the prednisone since I’ve been on it so long. She said my adrenal glands stop making them while I take them and that explains why I get sick if i stop them.
I am taking 4 mg of folic acid a day, 2500 mg of biotin, biosil, hair skin nails supplement and an herbal hair and skin supplement.
I just ordered some hair extensions but I am worried I will lose so much hair I won’t be able to even wear them. I would have to move on to a wig. I’m only forty one and have super sensitive skin. I’m not sure I will tolerate the extensions much less a full wig.
My only hope is that I will stop needing all the steroids soon snd my hair will grow back.