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Living with Psoriatic Arthritis (PsA)

Is there anyone out there over 50 with having PsA 20 yrs or more


#1

Is there anyone out there over 50, and maybe had PsA more than 20 years. I am and I feel the longer I have it, the worse it gets. My body rejects remicade, and now I only have mexetretrate ( excuse my spelling) which does nothing, while my doctor searches for something that works, and that I can afford. It seems that all I live for are pain pills. The aching seems to never go away.


#2

Hi balklu.

Sorry to hear of your lack of options. I’m hoping someone will come along with ideas on that front.

I reckon many of us in our 50s and 60s may have had PsA for 20 years or so even if most of that time was prior to diagnosis. It’s a bit like an iceberg with the diagnosed years as the visible part! And to continue the analogy (wish me luck), I suspect it’s the massive great chunk below the water line that has done most of the damage.

Describing pain is the devil’s own job but I usually associate the word ‘aching’ with damage rather than with active PsA, for myself anyway. Are there signs that your PsA is especially active?

I ache like hell a lot. If one more doctor tells me that what is currently going on in my joints is ‘ONLY’ OA I will rent my garb & run amok. Then they’ll be sorry! Anyway, my joints have a lot of problems but the PsA is quiet. I’m going to sing the same old song here, but if your aching is damage-related then any exercise you can do will help. Having said that, I’ve just started doing a new form of Tai Chi that involves twisting the limbs & spine a little and it is hurting not helping, so discretion is required. Usually though I find that the right type and the right amount of exercise is an effective antidote to aching.


#3

I’m over 50 and hv been diagnosed for 17 but prob had longer but couldn’t get any dr to figure it out. I was on methatrexate early on but stopped bc I felt even worse . Then embel now humira. I’m 95% well. My friend who is almost 60 had to switch to stelira (spelling?) which worked (from himira). I don’t know about the cost ;/
I’m so sorry nothing is working.


#4

Agreed. Even though you really don’t want to when you’re hurting you hv to keep moving.


#5

Me! :wave:

My troubles started around the age of forty, and got progressively worse until I was sixty. At that point I was diagnosed. Almost two years later, I was put on a biologic and, although I’m not 100% pain free, I’m very well considering I’m sixty-five now. Enbrel did me for a year and Humira’s been good for two.

If your body hated Remicade, is there another biologic that you could try? The manufacturers all have assistance programs. I don’t know the details but our US members would be able to explain.


#6

Yes, @baklu I am 71 now and had my first episode in my late 20s, followed by decades of undiagnosed or misdiagnosed pain and the overuse of Advil.

I wasn’t diagnosed with PsA until 2012. Injectable methotrexate has helped a lot, but recently pain has spiked. Physical therapy has helped slowly, and now that I am 5 years post breast cancer I can go on Humira. Off to see my rheumatologist in a few minutes.

I can’t really tell if my pain is worse now than when I was younger. It’s very hard to remember pain accurately for me. But, it does seem that I am spending more energy and effort to find relief.