Well, it has been four years since I diagnosed, and fortunately, I didn’t have to go for years before they figured out what it was.
I have been through Otezzla, Enbrel, Cosentyx, and now Humira. I read about everyone having joint issues where they degenerate and then about the enthesitis. I’m not sure that the joint/bone is my biggest problem. My major source of pain is around the joint and in the muscles.
Today, I am home from work again because of the muscle pain. I have been unable to sleep for two nights becasue of my legs and arms. My thighes and calves hurt badly as well as my biceps. My legs and arms are so stiff and sore in the muscles.
I wonder often if I have some other diseases because everything you read about PsA is all about the joints and deteration. Maybe I could understand bone pain from the joints, but I am having a hard time accepting all this muscle pain. I guess I worry it is something more sinister, but what?
It seems there is two types of PsA. Joint and bone issues, then tendon and muscle issues, or for some, both.
I am feeling little relief from the muscle pain. Oxy and Robaxin only do so much without being stoned all the time. I am getting to a point that I don’t want to move. I don’t want to go to work. I am getting to a point of no longer trying.
My doctor is ready to disable me, but I don’t want that either.
Sorry, just feeling sorry for myself. Wishing it would all get better somehow. I’m holding out in hopes on the Humira.