I just left my rheumatologist and I am so confused!
My original rheumatologist left the practice about 5 months ago and I got a new doctor. He has always seemed a little side-eyeing about my PsA diagnosis because I’ve never really had a rash. I had severe eczema as a kid and my o.g. rheumatologist seemed to think that may have been a misdiagnosis and was actually psoriasis plus I had nail pitting.
Well, today I have been pronounced to have officially failed Cimzia. I have had severe swelling in my PIP joints on my right hand that have now gotten to the point where I can’t make a fist and I cant even bend my index finger. I got a pretty big steroid shot in my arm to try to counter act it as well as my final Cimzia injection.
So when we started talking about my next medication I brought up Otezla and my doctor said no because that’s for psoriatic arthritis and I was like yeah… and he said he’s been relying on my previous doctor’s diagnosis but it’s his opinion that I have RA and not PsA. I should have asked more questions but I was so flustered that I basically just said oh,ok.
So now I have to decide if I want to try Enbrel, Humira, Simponi or if I want to jump to an infusion. But right now I just keep thinking “Huh???” When I got the PsA diagnosis it just made a sense (other than the rash) because the symptoms fit so nicely with what I’ve experienced. And now I kind of feel like my life just got flipped upside down again.
Any advice on dealing with this? Should I get a 3rd opinion?