I’ve been having issues with my left upper thigh and a bit more fatigue than normal since Christmas. It has waxed and waned (better when I had an asthma flare and was put on steroids in January; then worse). It got really bad last week, to the point where I was praying to make it to yesterday and my follow-up.
I start talking and the NP knows exactly where I’m going. Turns out, enthesitis and tendonitis means the PsA has now moved into my upper thigh–we hope for a short time.
Of course, the larger implication is that Humira is no longer doing well at controlling my psoriatic arthropathy. I beat the textbooks–Humira was the first biologic I tried. I got 5+ good years out of it. I may be able to go back on it down the pike.
I’ve also failed the three DMARDs I tried (MTX, Levlunomide, Sulfasalazine). NP refused to even consider Plaquenil because of my family history of macular degeneration.
We’ll see how long it takes for health insurance to give the okay and for me to begin loading doses of Cosentyx. I draw the line at dyeing my hair pink like Cindy Lauper (purple, yes; pink, no).
My pulmonary appointment resulted in blood work to see if I have Eosinophilic Asthma.
I told Paul that I’m fortunate. I’ve been dealing with PsA since at least 2006; it simply decided in 2018 to move into new territory. Dealing with asthma is also familiar. I don’t feel as badly before I was diagnosed, but I know now that I can feel better.
I don’t have to learn about something new. I have Paul. I don’t have MS or ALS. I have health insurance. I have a rheumatology and pulmonary team I trust. I have a job I love.
That’s not to say that it’s not going to take time to put all this together, including praying that I get even half of the results on Cosentyx that I did on Humira. This is a hitch (pretty good sized one) in the way I get along.