Hey y’all. It’s been a rough week or two and not over yet.
Long story short, my rhuemy NP believes I have a pinched nerve in my neck caused by either inflammation or bone spurs or both. I’ve still got to get the nerve conduction test done and now it’s asap. The blood test results for lupus were good. Thank God No lupus!!
But the Np confirmed yesterday I have PsA. I’ve got sausage toes. I’ve had them before but yesterday it was obvious when she saw them. So thank God for a Confirmed diagnosis finally!!
This pinched nerve if that’s what it is, is horrible pain! Nothing is helping ease the pain! I can’t sleep more than two to four hours if I’m lucky. I wake up from the pain. But if there’s a good side, NP prescribed mtx and another round of prednisone. She said if it’s caused by inflammation, they both will help and ease the pain.
I’m going to get the scripts today and start them tomorrow when my husband and son are off work. (Our oldest son has moved back in with us. He and his wife are separated ) That way if I have a bad reaction or side effects, they can get me to my doc or at least call him.
Has anyone had a pinched nerve in the neck caused by PsA or anything else? What helped the pain if anything? I’ve GOT to get some rest somehow! But Idk how.
Thank you all in advance! God bless!
Hey y’all. It’s been a rough week or two and not over yet.
Congratulations (?) on the diagnosis. The good news is that it helps propel treatment, which you are needing. MTX can take some time to kick in, but the prednisone will hopefully cover you until then.
The nerve conduction study needs to be asap because they’re worried about permanent damage occurring?
Hey @Stoney. Yes thank you! May sound crazy to be happy about a diagnosis but oh well lol not happy about having this blankedty blank disease but yes now finally! They can and are starting treatment.
Honestly I’m not sure why she said asap. Oh I did call to get it set up again today. It’ll be done on January 14th. I’m guessing like you said permanent damage.
If I had a pinched nerve, I’d want to visualise it in order to think about how the drugs might help. So, my probably clumsy understanding would be that PsA-related swelling is pressing on the nerve. Therefore, anything that addresses swelling, even if just by reducing it slightly, might bring relief. Prednisone sounds promising as it works quickly.
How long has this been going on? Sometimes the stuff that comes on suddenly can ease up just as quickly … I do hope so. Don’t worry about the drugs, chances are you won’t feel a thing … except better, sooner or later (and hopefully sooner!)
I’ve had a couple of episodes of a trapped nerve in my upper spine, although the pain was all down my right arm, complete agony and none of the prescription painkillers I was on for the PSA touched it. The GP prescribed amytripyline, which cleared the pain with a few days and made me drowsy enough to sleep.
Hey @Sybil yes that’s basically what I did too! Lol no pain meds even morphine helped. Just horrible almost nonstop pain! This started over a week ago, late Tue night/early Wed morning. This coming Tuesday will be 2 weeks. Oh yes!I got relief last night! Thank God! Within a couple of hours of taking the prednisone, I was nearly pain free! Wonderful feeling!! It lasted until about 10am this morning. Woke up with the ache all in my arm and shoulder again and acid reflux on top of it! Ugh! Took a Zantac and 400 mg motrin and feeling somewhat better. Thank God! The prednisone worked no doubt! I’m not sure if the mtx helped or not except making me sleepy and lightheaded. Doc said that I could divide the 5 2.5 mg pills up and as long as I take all 5 in 24 hours. I took 3 last night and going to take the last 2 today after I eat something. Acid reflux has subsided so coffee time. Lol
So thankful so far I haven’t had any really bad SE from the mtx. Praying it does what it’s supposed to do soon.
Hey @Pilgrimchris oh no! But yes I know exactly what you mean! Same here! And hard to explain it to anyone that hasn’t had something like this before. Er doc gave me a shot of morphine and it didn’t even help ease the pain. My husband and son were like how can it not help??!! Lol but I swear it didn’t! Just made me sleepy and loopy.
I haven’t ever heard of that med. My rhuemy gave me scripts for prednisone and mtx. The prednisone worked for sure within a couple of hours I was nearly pain free. Praise God for prednisone!!! And I slept for a good 5 hours! Which you probably understand is good with a pinched nerve or whatever the nerve is doing.
Like Sybil, we believe and the prednisone helping so much confirmed, it’s inflammation pressing on the nerve or something like that. Did your problem with the nerve get resolved? If so, how long did it take? With meds or surgery?
Mixed results then, but some really good new in that mix. Fingers and toes crossed for you!
Ok. So here’s my deal. I went to internal dr for neck pain. She threw me in pain clinic. Years later, failed out waiting for surgery. I’m wondering, what about all the other pains I have. Bilat plantar fasciitis, IT band that I thought was just the hip. Husband came home from woman’s conference(he’s a PA) he says, you have PsA! Surgeons now say, your neck is not ready for surgery…2 weeks later I get dactylitis. Done. What your neck pain is, is probably tendonitis. That was YEARS ago. And now I’m burning through sulfasalazine, methotrexate, humira, now doing humira AND sulfasalazine. Not working… I’m going to ask him if I can next try stelara because it seems best for enthesitis. Stress is the worst. We need to learn to deal:roll_eyes: God bless you, Anne
I think what’s happening is that the enthesitis causes bone spurs. Those, in turn, pinch off nerves and blood flow. So ultimately it’s the enthesitis. I had plantar fasciitis for 3 yrs straight prior to diagnosis and now have bone spurs there too.
Thanks for this information, LaMomma. Here’s a little more detail from webmd: https://www.webmd.com/arthritis/psoriatic-arthritis/enthesitis-enthesopathy#1
It sounds like @AngieB that you’re finally on the right road. I’m so glad the pred did what it’s supposed to do. I suffered neck problems for years less so, far less so interestingly since I got PsA. Sometimes it was of the nerve variety and sometimes more like a ‘crick’ in your neck. I wouldn’t wish either on my worst enemy.
Remember to take photos on your phone of any weird swellings of anything. That way you can show the medics the photos if your body decides not to cooperate at the time of the appointment. That was and is invaluable for me.
I so hope the mxt does its stuff for you with little or no ill effects. Like you morphine tends to do little for me other than make me loopy, too loopy that I invariably refuse it whenever its offered.
And let’s hope the nerve tests in January give you comprehensible advice.