I am very sorry for having not hanging out or even haunting the board for quite some time.
We have all had that, “I am through dealing with this. Nothing is gonna fix me. I hate doctors, I double dog hate insurance drones who don’t know the difference between their butts and a hole in the ground. And I triple dog hate these stupid medicines that dangle hope just enough to go nah we’re kidding.”
So I have been gone. Abandoned all hope and wandered the cosmos.
Hi fellas, remember me? I’m back!
The Good. I have a Rheumy who has a brain now. And they care about the patient. I’m on Remicade. It seems to be doing a fairly solid job so far.
The Bad. It takes two days to recover from the infusion. I get one every 8 weeks but it stops working at week 6. Kinda like hitting a wall, stops.
The Ugly, the reason the post is here in this category. Symptoms:
First, PsA symptoms. My feet are trashed. Have been home to Athletes Foot and secondary yeast infection for decades. The skin is dry and cracked behind the swamp toes worse than any desert you will ever witness. No matter what I do the permanent stench from my feet is repulsive to pig farmers and paper mill workers.
All of my nails look like the surface of the moon and, of course, are host to fungus and thickening.
All my pit like areas, you know, are red and swollen.
Thankfully very little surface red spots or patches.
Second, symptoms of meds. Where to start? They are all combined just on this side of keeping me alive. They all have warnings that say if you experience this that or the other, contact your doctor right away. I couldn’t take anything if I followed those standards.
Trouble breathing, chest tightness, light-headed, dizziness, vision trouble, weakness, tingling, tremors, dry mouth, congestion, and on, and on.
The PsA symptoms are improving on the Remicade. Not sure what to make of that. Either it will stop working real soon or it will kill me quickest of all.
I’m always a glass kinda half - where’s the vodka? person.
Buh-bye for the moment.
I’ll be back.