When I was 17 years of age I woke up one day with a random dark ring on my left foot toe I thought I had just kicked it on the side of the bed, looking back now I wish that was the case.
This was the start of many Dr Appointments/ MRI, X-Rays, blood tests and regular specialist check ups. to find out what was wrong with me. My toe had started to swell up really badly and I was struggling to walk properly and wear enclosed shoes.
There was three months of waiting for answers, I was later informed it was Psoriatic Arthritis… I have been put on a high dosage of Prednisone, Cellarbrix and Methotrexate once a week. I would feel really good and pain free until my specialist would slowly try and ween me off the tablets to see if there was any improvement. Unfortunatley not, it started to get worse and spread through to my other toe and big toe, I also started to feel stiffness and pain in my hip, shoulder, collarbone, neck, and sharp pain in my left thigh which made it a struggle to walk. When i thought things couldnt get any worse, my eye suddenly flared up blood shot red and irritated. At this point i was really concerned i rang my specialist to see if it was related. i thought surely not… He informed me it was common for this to happen. I was put on special eyedrops and my medication was put right back up to where i started. This did settle it down a bit but I still suffer with eye irritation pain.
My body has been subjected to a lot of different medication and they have a lot of nasty side effects- weakened immune system- causing me to always be catching sickness and feeling unwell, liver damage risk- i have regular blood tests to monitor this.
After a year of hell and trialling all the medication and having no improvements, My specialist said it was time to introduce a next stage of treatment for me. Humira self injections in the stomache every two weeks, with 8 different injections to trial he is hoping this injection technique would bring me into remission. After my second injection I have noticed a huge difference, though i still have a sore eye and my toes cease up in pain when i try and go out walking and my mum has to come and pick me up. Or if i am just walking around the shops its always in the back of my mind wondering how much longer i have until my toes gives out and cramp.
Im 19 years old now and still trying to understand why this has happened to me, it has had such a massive impact on my life and how i go about doing simple everyday life things that once were easy. Its really hard to deal with and people my age ask me why i have this when im so young?
I would love any advice on how i can deal with this