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Living with Psoriatic Arthritis

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Author: benmunoz

Hello world!

September 25, 2019September 25, 2019 benmunoz

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Self-advocacy makes a difference in healthcare.

By joining our unique patient registry you can help advance medical studies and readily access the latest in research and treatment for your disease

In this patient registry every patient has access to every opportunity.

Join now

Recommended Reading

  • How to know when your "drug of choice" is working
  • Shortness of breath and PsA
  • Please, make me chuckle!
  • New Rheumatologist.., am I crazy?
  • Finding my Normal
  • How fast did these two medications work for you?
  • Hello, Its Me! (I love that song)

Ben's Friends Sites and Social Media

Official Ben's Friends Website
List of Ben's Friends Patient Communities
Ben's Friends Facebook
Ben's Friends Instagram
Ben's Friends LinkedIn
Ben's Friends Pinterest
Ben's Friends YouTube

Blogs

  • Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact 
    Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact  appeared first on News From Ben's Friends.
  • Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
    For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.
  • The Family’s Burden: Shedding Light on the Challenges of hATTR Amyloidosis
    Hereditary Transthyretin (hATTR) Amyloidosis is an inherited condition caused by mutations in the transthyretin gene, leading to the accumulation of The post The Family’s Burden: Shedding Light on the Challenges of hATTR Amyloidosis appeared first on News From Ben's Friends.
  • The Ripple Effect: How ADEM Impacts Patients and their Loved Ones
    Acute Disseminated Encephalomyelitis (ADEM) is a rare disorder marked by severe swelling in the brain and spinal cord. It usually The post The Ripple Effect: How ADEM Impacts Patients and their Loved Ones appeared first on News From Ben's Friends.
  • Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa
    Recognized as both “butterfly skin” and “the worst disease you’ve never heard of,” epidermolysis bullosa (EB) casts a profound impact The post Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa appeared first on News From Ben's Friends.

Testimonials



"I'd been diagnosed and undergoing treatment a few months when I discovered Living with Psoriatic Arthritis. I 'lurked' for a while as I'd never participated on any online/social network before, but any concerns I had were soon put to rest as it was impossible to ignore the honest and genuine people in this community.


When I signed up, the welcome was amazing and since that first day the community has been open, friendly, supportive, informative, cajoling and has empowered me to understand my disease, the treatment options, and advocate for myself when necessary.

--- Jules, LivingwithPsoriaticArthritis.

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Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.

Sharyn

Ben’s Friends continues to expand this gift of love and support by creating more communities for folks sharing different great health challenges. Ben’s growing patient support sites continue to provide support with its members while new members share the challenges and share the joys. Thanks to Ben, Shalon and all the others who manage this site. It is a gift that keeps on giving.

--- Sharyn

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Your website then was my biggest support.

Pat

We met back in 2006, in Austin at St.Davids. I and my daughter, Britanny, who was then 16 years old were new to the site. Your website then was my biggest support and we came to know that so many others are struggling through very similar issues. Today Brittany is 21 and married almost a year ago. Britanny now lives here in Austin and had gone for a year in San Diego. After her gamma knife operation, we had to wait the two long years. I am so proud of YOU!!! You are such a wonderful example of turning the hurts and pains of this life into positive! May you be ever so BLESSED!!!

--- Pat

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